DAY +5

Kristy said that Liam got sick several times this morning. I haven’t gotten a full update on Liam so I will post more when Kristy give me more info. It is so hard not being with him.

They moved them to a bigger room this morning. No shower but it is bigger, and has a patio off the room. That will be great for Kristy. But Liam should not be out in direct sun light. The doctors said it can sometimes can cause GVH (graft v. host). He will need to be completely covered in sunscreen, even under his clothes. The sun penetrates thru the clothing and can cause skin problems. So the best thing is to avoid it, maybe in the early morning or after sun down.

Kristy’s Twitter Update: May 17, 2011, 10:44 PM
He is still struggling with the pain but still is so sweet. He should start to feel better around day+11, he should also start to graphed around Day +14to +20
about 1 hour ago

Platelet count is at 40 if it drops to 10, he will need a transfusion. ANC (Absolute Neutrophil Count) is still 0. Magnesium level was low so they gave him some.
about 1 hour ago

Today started at 6am Liam got his leg stuck in the crib railing and his leg is now very bruised. Then he threw up and got a bloody nose.
about 1 hour ago

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4 Responses to DAY +5

  1. Kelly says:

    Thinking of you all. I know these days are really hard. The first few weeks are really, really tough, but we’re all here for you.

    As for the sun, we still are very careful with Hannah. She is never out in direct sunlight for more than a few minutes. . . the risk isn’t worth it. We use a great sunscreen by Neutrogena. They have 85+ and 100 SPF . . . you’ll love it! :-)

    Hang tough Liam . . . we are all pulling for you.

    The Marsh Clan
    (Hannah Marsh, HLH Survivor)

  2. admin says:

    Comments from Liam’s FB Group – Liam’s Journey – HLH Warrior

    Connie E. Williams-Brawdy: MY HEART & PRAYERS GO OUT 2 YALL
    May 17 at 2:41pm ·

    Chandra Tony Parsons: Prayers to the lil guy! Please keep us updated
    May 17 at 3:29pm · · 1 person

    Karen Beavers: wow day +5 liam is fighting hard! So sorry to hear he is being sick though :c good news they have a bigger room, a bit of fresh air and sunshine might give kristy a boost. Deakon had very sensitive skin during his treatment and still has no…w so maybe you would want to test a small amount of suncream on liam before you cover him in it? Its just a thought you have probably already had just thought i would mention it, the last thing you want to be doing is stressing about a rash and what it is. Sending lots of love as always, keep strong you guys you are all doing so well xxxxMay 17 at 3:49pm · · 1 person
    Chandra Tony Parsons likes this.